CAPRI National Juvenile Idiopathic Arthritis Registry

Recruiting now

Conditions studied: Juvenile Idiopathic Arthritis (JIA)

In brief

Juvenile Idiopathic Arthritis (JIA) is a disorder of unknown cause characterized by chronic inflammation of the joints and other organs. It affects about 1 in a 1000 Canadian children and if untreated it can produce lifelong disability. The Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI) includes most pediatric rheumatologists in Canada. They have successfully collaborated for the past 20 years producing groundbreaking research on the modern course and outcomes of JIA. The CAPRI JIA Registry is an ongoing universal registry of Canadian children with JIA that collects longitudinal data on disease course, outcomes and adverse events to inform healthcare decisions and to gain new insights into the disease and its treatment.

Key facts

Study ID

NCT03245801

Run by

University of British Columbia

People needed

1238

Starts

2017-02-01

Expected to finish

2026-02-01

Last updated by the study team

2025-06-25

Who can join

Age: any, up to 18. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• All patients newly diagnosed with JIA within the last 3 months
• All patients who participated in the original ReACCh-Out study
• LEAP study patients from 'newly diagnosed' and 'ReACCh-Out' cohorts who have completed their two year follow up in LEAP

You may not qualify if…

• Patients with an unconfirmed JIA diagnosis
• Patients diagnosed with JIA more than 3 months prior to the clinic visit, who were not followed in LEAP and /or ReACCh-Out studies.
• If the family as a whole is unable to answer questionnaires in English or French

Where it is running

• University of Calgary / Alberta Children's Hospital — Calgary, Alberta, Canada (enrolling)
• University of Alberta — Edmonton, Alberta, Canada (enrolling)
• BC Children's Hospital — Vancouver, British Columbia, Canada (enrolling)
• University of Manitoba/Children's hospital research institute — Winnipeg, Manitoba, Canada (enrolling)
• Memorial University/Janeway Childrens Health and Rehabilitation Centre — St. John's, Newfoundland and Labrador, Canada, Canada (enrolling)
• IIWK Health Centre — Halifax, Nova Scotia, Canada (enrolling)
• McMaster University/McMaster Children's Hospital — Hamilton, Ontario, Canada (enrolling)
• London Health Sciences Centre — London, Ontario, Canada (enrolling)
• Children's Hospital of Eastern Ontario — Ottawa, Ontario, Canada (enrolling)
• Hospital for Sick Children — Toronto, Ontario, Canada (enrolling)
• McGill University Health Centre — Montreal, Quebec, Canada (enrolling)
• Université de Montréal — Montreal, Quebec, Canada (enrolling)
• University of Sherbrooke — Sherbrooke, Quebec, Canada (enrolling)
• Royal University Hospital — Saskatoon, Saskatchewan, Canada (enrolling)
• CHU Québec - Universite Laval — Québec, Canada (enrolling)

Full record on ClinicalTrials.gov

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