Fibrous Dysplasia, McCune-Albright Syndrome Patient Registry
Recruiting now
Conditions studied: Fibrous Dysplasia, McCune Albright Syndrome, Mazabraud Syndrome
In brief
The FD/MAS Patient Registry is an IRB-approved research study that that invites the patients and families to help answer some of the biggest questions about FD/MAS by completing questionnaires about their lives with FD or MAS. Have you enrolled in the FD/MAS Patient Registry yet? Are you up-to-date on your surveys? Take a trip to www.fdmasregistry.org today to learn more about the project, enroll, complete your surveys, or make sure you aren't due to provide more info! The FD/MAS Patient Registry: Your story powers research.
Key facts
- Study ID
- NCT03231644
- Run by
- Tovah Burstein
- People needed
- 600
- Starts
- 2016-10-31
- Expected to finish
- 2028-10-01
- Last updated by the study team
- 2025-08-12
Who can join
Age: any. Sex: any. Healthy volunteers: not accepted.
Where it is running
- Tovah Burstein — Bethesda, Maryland, United States (enrolling)
Full record on ClinicalTrials.gov
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