The International Registry for Leigh Syndrome

Recruiting now

Conditions studied: Leigh Syndrome, Leigh Disease, Leigh's Necrotizing Encephalopathy, Subacute Necrotizing Encephalomyopathy, Subacute Necrotizing Encephalomyelopathy

In brief

The purpose of this study is to develop a database containing clinical and laboratory information for patients with Leigh syndrome. The goal is to provide a greater understanding of Leigh syndrome allowing further characterization of this disease.

Key facts

Study ID

NCT03137355

Run by

The University of Texas Health Science Center, Houston

People needed

200

Starts

2015-06-17

Expected to finish

2030-06-17

Last updated by the study team

2023-12-01

Who can join

Age: any, up to 100. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• All participants with a diagnosis of Leigh syndrome will be invited to participate

You may not qualify if…

• People without Leigh syndrome

Where it is running

• The University of Texas Health Science Center at Houston — Houston, Texas, United States (enrolling)

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.