China Registry for Genetic / Metabolic Liver Diseases

Recruiting now

Conditions studied: Genetic/Metabolic Liver Diseases

In brief

CR-GMLD registry started on June 13, 2015 to collect cases of genetic/metabolic liver diseases from tertiary or secondary hospitals in mainland China. Demographics, diagnosis, laboratory test results, family history and prescriptions were recorded. Patients' whole blood and serum were collected for genetic testing and future researches. These patients will be followed-up every six to twelve months.

Key facts

Study ID

NCT03131427

Run by

Beijing Friendship Hospital

People needed

20000

Starts

2015-06-13

Expected to finish

2027-04-28

Last updated by the study team

2017-04-27

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Patients who were diagnosed or possibly diagnosed with Wilson's disease, hereditary hemochromatosis, hereditary hyperbilirubinemias, inherited cholestatic liver disease or other genetic/metabolic liver diseases.

You may not qualify if…

• Patients who are unable or unwilling to provide informed consent.

Where it is running

• Beijing Ditan Hospital — Beijing, Beijing Municipality, China (enrolling)
• Beijing Anzhen Hospital, Capital Medical University — Beijing, Beijing Municipality, China (enrolling)
• Peking University First Hospital — Beijing, Beijing Municipality, China (enrolling)
• Beijing YouAn Hospital — Beijing, Beijing Municipality, China (enrolling)
• Nanfang Hospital of Southern Medical University — Guangzhou, Guangdong, China (enrolling)
• Hebei Medical University Third Hospital — Shijiazhuang, Hebei, China (enrolling)
• Henan Provincial Hospital — Zhengzhou, Henan, China (enrolling)
• Zhongshan Hospital, Fudan University — Shanghai, Shanghai Municipality, China (enrolling)
• Jinshan Hospital of Fudan University — Shanghai, Shanghai Municipality, China (enrolling)
• West China Women's and Children's Hospital, Sichuan University — Chengdu, Sichuan, China (enrolling)
• Affiliated Hospital, Logistics University of People's Armed Police Force — Tianjin, Tianjin Municipality, China (enrolling)
• Xinjiang Uygur Autonomous Region Traditional Chinese Medicine Hospital — Ürümqi, Xinjiang, China (enrolling)

Full record on ClinicalTrials.gov

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