Pregnant Women s Views About the Ethics of Prenatal Whole Genome Sequencing
Completed
Conditions studied: Pregnant
In brief
Background: Prenatal whole genome sequencing (PWGS) will give expecting parents large amounts of genetic data about their baby. This raises ethical concerns. Researchers want to find out if women want access to the kind of data PWGS provides. They want to know why and under what circumstances women would or would not want the data. Objective: To explore the views of pregnant women about possible use of PWGS. To find out whether they would want different categories of genetic data, and how they would use such findings. Eligibility: Women ages 18 and older who pregnant and speak English or Spanish Design: Participants will be recruited by their doctors. Participants will take a survey about their views of PWGQ. They may take it online or on paper.
Key facts
- Study ID
- NCT03105492
- Run by
- National Human Genome Research Institute (NHGRI)
- People needed
- 553
- Starts
- 2017-06-15
- Expected to finish
- 2019-04-10
- Last updated by the study team
- 2019-04-22
Who can join
Age: 18 and older, up to 50. Sex: female. Healthy volunteers: not accepted.
Where it is running
- INOVA Fairfax Hospital — Falls Church, Virginia, United States
Full record on ClinicalTrials.gov
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