Pregnancy in Osteogenesis Imperfecta (OI) Registry

Completed

Conditions studied: Osteogenesis Imperfecta, Brittle Bone Disorders

In brief

The purpose of this study is to learn about pregnancy outcomes in osteogenesis imperfecta (OI). Patients enrolled in the Brittle Bone Disorders (BBD) Contact Registry (CR) will be invited via email to participate in this study.

Key facts

Study ID

NCT03072303

Run by

University of South Florida

People needed

170

Starts

2017-06-16

Expected to finish

2019-09-13

Last updated by the study team

2019-10-16

Who can join

Age: any. Sex: female. Healthy volunteers: not accepted.

You may qualify if…

• Female with OI who has delivered an infant of at least 24 weeks' gestation
• Participant in the BBD Contact Registry

You may not qualify if…

• Inability to provide informed consent and complete survey
• Males
• Women with OI who have not delivered children and gestations associated with higher order multiples

Where it is running

• RDCRN Data Management and Coordinating Center, University of South Florida — Tampa, Florida, United States

Full record on ClinicalTrials.gov

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