Teen and Young Adult Connections for Support From Multidisciplinary Professionals & Peers
Completed · Not applicable
Conditions studied: Short Bowel Syndrome, Malabsorption, Malnutrition
In brief
12 month study testing mobile delivery of health information and connections to professionals and peers to improve health of teen/young adult HPN users.
Key facts
- Study ID
- NCT02987569
- Run by
- University of Kansas Medical Center
- People needed
- 83
- Starts
- 2016-07-01
- Expected to finish
- 2020-06-01
- Last updated by the study team
- 2020-12-02
Who can join
Age: 13 and older, up to 30. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- Total parenteral nutrition (TPN) patients/users and family members/caregivers (defined as those individuals involved in daily home HPN care) age 13 and older
- TPN users (also called HPN users) ages 13 through 30 must be receiving intravenous nutrition for a non-malignant short bowel disorder
- Read, write, speak English and provide informed consent
- Be able to participate in group clinic visits
You may not qualify if…
- Enteral nutrition dependency only
- Less than 13 years of age
- 13 through 17 years of age without parental consent
- Currently enrolled in an intervention study or HPN management program
- Severe cognitive impairment
- Disability disorders (e.g. blindness which cannot be accommodated for active participation in the group clinics
Where it is running
- University of Kansas Medical Center — Kansas City, Kansas, United States
Full record on ClinicalTrials.gov
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