Integrating Palliative Care for Patients With Idiopathic Pulmonary Fibrosis and Their Caregivers

Completed · Not applicable

Conditions studied: Idiopathic Pulmonary Fibrosis

In brief

Patients with Idiopathic Pulmonary Fibrosis (IPF) and their caregivers will be randomized to receive this intervention or usual care. The intervention will include information about the disease, self-management strategies, and introduction to advanced care planning in a format with enhanced content available across multiple domains (face-to-face, printed material, digital (tablet) delivered by an interventionist. The usual care group will be provided with routine printed patient education. At the end of life, IPF patients and their caregivers experience stress, symptom burden, poor quality of life, and inadequate preparedness for end-of-life care planning. The proposed study will measure feasibility, acceptability, and impact of a Supportive Care intervention.

Key facts

Study ID

NCT02929017

Run by

University of Pittsburgh

People needed

140

Starts

2017-03-23

Expected to finish

2020-06-24

Last updated by the study team

2020-08-07

Who can join

Age: 45 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• 45 years or older
• Primary Diagnosis of with Idiopathic Pulmonary Fibrosis (IPF)
• Has a caregiver, 18 years or older (spouse/partner/child/family member/friend), willing to participate.
• Sees a Simmons Center Physician for usual IPF care.

You may not qualify if…

• less than 45 years
• Not diagnosed with IPF
• Has an unwilling caregiver, or a caregiver under 18.
• Does not see a Simmons Center Physician for usual IPF care.

Where it is running

• Dorothy P. and Richard P. Simmons Center for Interstitial Lung Disease — Pittsburgh, Pennsylvania, United States

Full record on ClinicalTrials.gov

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