A Natural History Study of Canavan Disease

Completed

Conditions studied: Canavan Disease

In brief

The purpose of this study is to learn more about the natural history of Canavan disease

Key facts

Study ID

NCT02851563

Run by

NYU Langone Health

People needed

21

Starts

2016-05-01

Expected to finish

2019-04-01

Last updated by the study team

2019-11-01

Who can join

Age: any, up to 99. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• The patient must have a confirmed diagnosis of Canavan Disease as defined by elevated NAA levels, decreased ASPA activity, or mutations in the ASPA gene.

You may not qualify if…

• The PI will assess whether it is in the best interest of the patient to exclude them from the study for their own comfort and well being. In cases where the PI deems it appropriate, severely affected patients will be excluded

Where it is running

• Massachusetts General Hospital — Boston, Massachusetts, United States
• NYU Langone Medical Center — New York, New York, United States
• University Medical Center Hamburg-Eppendorf — Hamburg, Germany

Full record on ClinicalTrials.gov

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