ID Of Prognostic Factors In Mycosis Fungoides/Sezary Syndrome

Recruiting now

Conditions studied: Mycosis Fungoides, Non-Hodgkin's Lymphoma

In brief

The purpose of the study is to develop a prognostic index model for the rare disease of mycosis fungoides and sezary syndrome. This will be done by collecting standardized clinical data at various institutions. The investigators hope this will enable the identification of low- and high-risk groups for survival in order to improve patient care and outcome.

Key facts

Study ID

NCT02848274

Run by

Stanford University

People needed

2000

Starts

2016-10-01

Expected to finish

2027-03-01

Last updated by the study team

2025-10-22

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Diagnosis of advanced stage MF or SS (Stages IIB - IVB) within 6 months of presentation to the participating center
• Patients that are expected to have care administered at the participating center or jointly with referring physician(s) where follow-up data would be available

You may not qualify if…

• Patients diagnosed with early stage MF/SS (Stages IA-IIA) before progressing to advanced stage
• Patients diagnosed with advanced MF/SS more than 6 months prior to initial presentation to the participating center
• Exclude one-time consultation type of new patients.

Where it is running

• City of Hope — Duarte, California, United States (enrolling)
• Stanford University, School of Medicine — Palo Alto, California, United States (enrolling)
• University of Iowa — Iowa City, Iowa, United States (enrolling)
• Hackensack University Medical Center — Hackensack, New Jersey, United States (enrolling)
• University of Pittsburg — Pittsburgh, Pennsylvania, United States (enrolling)
• University of Texas Southwestern — Dallas, Texas, United States (enrolling)
• University of Utah Hospital — Salt Lake City, Utah, United States (enrolling)
• Hospital Italiano de Buenos Aires — Buenos Aires, Argentina (enrolling)
• Peter MacCallum Cancer Center, — Melbourne, Australia (enrolling)
• University of Sao Paulo Medical School — São Paulo, Brazil (enrolling)
• Peking University First Hospital — Beijing, China (enrolling)
• The University of Tokyo — Tokyo, Japan (enrolling)
• University Hospitals Birmingham — Birmingham, United Kingdom (enrolling)

Full record on ClinicalTrials.gov

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