Improving the Quality of Care for Adults With Inflammatory Bowel Disease

Enrolling by invitation

Conditions studied: Crohn's Disease, Ulcerative Colitis, Inflammatory Bowel Diseases

In brief

Innovative programs exist that suggest that care for people with chronic conditions is optimized when patients and providers have the information they need at the point of care and over time, to engage in shared planning and execution of treatment goals and care plans. This project aims to build an Inflammatory Bowel Disease Learning Health System, a shared information environment, that highlights collaboration among patients, clinicians and care team members, and researchers; for effective use of data for guiding care, value, improvement, and research.

Key facts

Study ID

NCT02791854

Run by

Dartmouth-Hitchcock Medical Center

People needed

10000

Starts

2016-02-26

Expected to finish

2030-12-01

Last updated by the study team

2025-08-21

Who can join

Age: 18 and older, up to 99. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• 18 years of age or older
• Diagnosis of Crohn's disease or ulcerative colitis or IBD unclassified
• Accept the terms and conditions of Informed Consent and Authorization
• Affiliated with a participating IBD Qorus site

You may not qualify if…

• Inability to provide informed consent
• Study key personnel cannot enroll as a study participant

Where it is running

• Cedars-Sinai Inflammatory Bowel Disease Center — Los Angeles, California, United States
• Hoag Digestive Health — Newport Beach, California, United States
• UC San Diego Health Inflammatory Bowel Disease Center — San Diego, California, United States
• University of Colorado Health — Denver, Colorado, United States
• Yale School of Medicine IBD Program — New Haven, Connecticut, United States
• MedStar Georgetown University Hospital Center for Inflammatory Bowel Disease — Washington D.C., District of Columbia, United States
• Gastro Health LLC — Miami, Florida, United States
• University of South Florida — Tampa, Florida, United States
• Atlanta Gastroenterology Associates — Atlanta, Georgia, United States
• Digestive Health Center — Boise, Idaho, United States
• University of Chicago Medicine Inflammatory Bowel Disease Center — Chicago, Illinois, United States
• Digestive Care Center — Evansville, Indiana, United States
• GastroIntestinal Specialists, A.M.C. — Shreveport, Louisiana, United States
• Corewell Health — Grand Rapids, Michigan, United States
• Dartmouth-Hitchcock Inflammatory Bowel Disease Center — Lebanon, New Hampshire, United States
• Saratoga Schenectady Gastroenterology Associates — Burnt Hills, New York, United States
• NYU Long Island- Inflammatory Bowel Disease Center — Mineola, New York, United States
• New York University Langone Medical Center — New York, New York, United States
• Weill Cornell Medical College — New York, New York, United States
• University of Rochester — Rochester, New York, United States
• The Oregon Clinic - Gastroenterology — Portland, Oregon, United States
• Penn State Hershey Inflammatory Bowel Disease Center — Hershey, Pennsylvania, United States
• Regional GI — Lancaster, Pennsylvania, United States
• Gastroenterology Associates — Providence, Rhode Island, United States
• Medical University of South Carolina — Charleston, South Carolina, United States

Full record on ClinicalTrials.gov

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