Patient Reported Outcomes Measures (PROM) in Carpal Tunnel Therapies in Patients With Inherited Neuropathies

Completed

Conditions studied: Carpal Tunnel Syndrome, Charcot-Marie-Tooth Disease, Inherited Peripheral Neuropathy

In brief

The purpose of this study is to learn about focal compressive median neuropathy at the wrist (Carpal Tunnel Syndrome) and outcomes of therapies (e.g. conservative and surgery) in the upper extremities of patients diagnosed with an inherited neuropathy. All patients enrolled in the Rare Diseases Clinical Research Network (RDCRN) Inherited Neuropathies Consortium (INC) Contact Registry who have marked one of the following disorders: CMT1A, CMT1B, CMT2A, CMT4, CMTX, other known CMT peripheral neuropathy, other unknown CMT peripheral neuropathy, or Hereditary Neuropathy with liability to Pressure Palsies (HNPP), will be invited via email to participate in this online study.

Key facts

Study ID

NCT02788734

Run by

University of South Florida

People needed

333

Starts

2016-06-01

Expected to finish

2016-11-19

Last updated by the study team

2018-03-15

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Diagnosis of CMT or HNPP
• Adults age 18 years and older
• Self-Registration at the Inherited Neuropathies Consortium (INC) Contact Registry

You may not qualify if…

• Inability to provide informed consent and complete survey
• Inability to read or speak English

Where it is running

• University of South Florida Health Informatics Institute — Tampa, Florida, United States

Full record on ClinicalTrials.gov

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