Rasch-analysis of Clinical Severity in FSHD

Completed

Conditions studied: Facioscapulohumeral Muscular Dystrophy

In brief

The purpose of this study is to make a standardized and scalable Rasch-built clinical severity scale to help in finding genetic and environmental modifiers of disease in Facioscapulohumeral muscular dystrophy (FSHD).

Key facts

Study ID

NCT02766985

Run by

University of Kansas Medical Center

People needed

44

Starts

2016-03-01

Expected to finish

2017-04-18

Last updated by the study team

2018-04-12

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Genetic confirmation of FSHD (either FSHD-1 or FSHD-2)

You may not qualify if…

• Do not understand English
• Unable to provide informed consent

Where it is running

• University of Kansas Medical Center — Kansas City, Kansas, United States
• University of Utah — Salt Lake City, Utah, United States

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.