Myeloproliferative Neoplasms (MPNs) Patient Registry

Recruiting now

Conditions studied: Primary Myelofibrosis, Polycythemia Vera, Essential Thrombocythemia, Mastocytosis, Leukemia, Myeloid, Chronic, Atypical, BCR-ABL Negative, Leukemia, Myelomonocytic, Juvenile, Chronic Eosinophilic Leukemia-not Otherwise Specified, Myelodysplastic-Myeloproliferative Diseases, Neoplasms, Leukemia, Myelomonocytic, Chronic

In brief

The mandate of this MPN registry is to collect clinical information, including molecular results, from consenting patients with a variety of MPNs at different time points during the course of their disease.

Key facts

Study ID

NCT02760238

Run by

University Health Network, Toronto

People needed

5000

Starts

2015-04-01

Expected to finish

2027-10-31

Last updated by the study team

2024-08-27

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Diagnosis of one of the following myeloproliferative neoplasms (MPNs):
• Atypical CML (aCML)
• Chronic eosinophilic leukemia-not otherwise specified (CEL, NOS),
• Chronic myelomonocytic leukemia (CMML)
• Chronic neutrophilic leukemia (CNL),
• Essential thrombocythemia (ET),
• Juvenile myelomonocytic leukemia (JMML),
• Mastocytosis, MPN unclassifiable
• MPN/MDS unclassifiable,
• Primary myelofibrosis (PMF),
• Post-essential thrombocythemia myelofibrosis (post-ET MF),
• Post-polycythemia vera MF (post-PV MF)
• Refractory anemia with ringed sideroblasts associated with marked thrombocytosis (RARS-T)

You may not qualify if…

• None

Where it is running

• Princess Margaret Cancer Centre — Toronto, Ontario, Canada (enrolling)

Full record on ClinicalTrials.gov

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