A Diagnostic Screening Trial Seeking AL Amyloidosis Very Early
Completed
Conditions studied: Plasma Cell Dyscrasia, Monoclonal Gammopathy
In brief
This protocol seeks to enroll smoldering multiple myeloma (SMM) and monoclonal gammopathy of undetermined significant (MGUS) patients with λ light chain (LC) involvement, a group of patients for whom standard of care is observation not treatment. Patients with SMM and MGUS have a precursor plasma cell disorder from which light chain amyloidosis (AL) can evolve. In this trial, enrolled subjects will have blood and if available bone marrow cells evaluated by molecular testing to determine their clonal λ LC variable region (VL) germline gene. Seventy percent of AL cases involve just 7 germline donors, 5 of which are λ germline donors. The hypothesis that will be tested with this protocol is that the presence of AL germline genes associated with AL in patients with a pre-existing diagnosis of λ SMM or λ MGUS indicates the presence of AL or risk of progression to AL.
Key facts
- Study ID
- NCT02741999
- Run by
- Tufts Medical Center
- People needed
- 20
- Starts
- 2016-04-01
- Expected to finish
- 2020-04-05
- Last updated by the study team
- 2020-05-11
Who can join
Age: 18 and older, up to 99. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- MGUS and SMM patients with λ LC involvement with dFLC > 23 mg/L and κ:: λ free LC ratios < 0.26. Subjects must be able to share their medical records and ship us bone marrow and blood samples.
You may not qualify if…
- MGUS and SMM patients with light chains that do not meet the inclusion criteria as well as patients with κ LC involvement or active myeloma will not be included. And patients who are unable to send us blood and marrow for any reason will not be eligible.
Where it is running
- Tufts Medical Center — Boston, Massachusetts, United States
Full record on ClinicalTrials.gov
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