Allied Cleft & Craniofacial Quality-Improvement and Research Network (ACCQUIREnet)

Enrolling by invitation

Conditions studied: Cleft Lip, Cleft Palate, Cleft Lip and Palate

In brief

The Allied Cleft \& Craniofacial Quality-Improvement and Research Network (ACCQUIREnet) is a group of multidisciplinary cleft teams that have implemented a system for prospective collection of outcomes data, based on the ICHOM Standard Set for the Comprehensive Appraisal of Cleft Care, CLEFT-Q, and other outcomes instruments. Participating cleft teams may analyze clinical and psychosocial outcomes related to care of the child with cleft lip and/or palate (CL/P), compare its performance with those of other cleft centers, and identify opportunities for quality improvement.

Key facts

Study ID

NCT02702869

Run by

Duke University

People needed

1000

Starts

2016-10-01

Expected to finish

2031-12-01

Last updated by the study team

2026-01-07

Who can join

Age: 0 and older, up to 22. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Typical orofacial clefts, of which subtypes are:
• Unilateral or bilateral cleft lip
• Unilateral or bilateral cleft lip and alveolus
• Unilateral or bilateral cleft lip and alveolus and palate
• Unilateral or bilateral cleft lip and palate
• Overt cleft palate
• Occult cleft palate

You may not qualify if…

• Atypical (Tessier) facial clefts

Where it is running

• University of Florida - Shands Hospital — Gainesville, Florida, United States
• Joe DiMaggio Children's Hospital — Hollywood, Florida, United States
• Orlando Health - Arnold Palmer Hospital for Children — Orlando, Florida, United States
• Johns Hopkins - All Children's Hospital (JHACH) — St. Petersburg, Florida, United States
• Maine Medical Center — Portland, Maine, United States
• Harvard University - Boston Children's Hospital (BCH) — Boston, Massachusetts, United States
• Washington University - St. Louis Children's Hospital (WUSTL) — St Louis, Missouri, United States
• Duke University - Duke Children's Hospital & Health Center — Durham, North Carolina, United States
• Wake Forest University - Brenner Children's Hospital — Winston-Salem, North Carolina, United States
• University of Texas at Houston - Children's Memorial Hermann Hospital — Houston, Texas, United States
• Dalhousie University - IWK Health Centre — Halifax, Nova Scotia, Canada

Full record on ClinicalTrials.gov

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