Improving Cancer Family Caregivers' Knowledge and Communication About Care Options

Completed · Not applicable

Conditions studied: Family Caregivers

In brief

The purpose of this two-year mixed methods study is to develop and test an intervention to improve cancer family caregivers' knowledge of care options (curative, palliative, and hospice care) and goals of care communication as part of a self-management (SM) training program. The two specific aims of this project are to: 1. Develop a psycho-educational intervention called Managing Cancer Care: A Caregiver's Guide (MCC-CG), for family caregivers of patients with breast cancer to increase knowledge of care options, goals of care communication, and other SM skills. 2. Evaluate the feasibility and preliminary efficacy of the MCC-CG in a pilot randomized controlled trial compared with an attention-control condition (symptom management education) on knowledge of care options, goals of care communication, and other key SM skills (engagement in SM, management of transitions and uncertainty, increasing self-efficacy, appropriate use of health care resources).

Key facts

Study ID

NCT02616107

Run by

Yale University

People needed

35

Starts

2014-07-01

Expected to finish

2017-01-01

Last updated by the study team

2017-03-07

Who can join

Age: 18 and older, up to 110. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• A family member of an individual with any stage of breast cancer receiving curative, palliative, or hospice care
• Aged 18+
• English speaking
• Live in Connecticut
• The patient for whom the participant is a caregiver has a six-month prognosis

Where it is running

• Smilow Cancer Hospital — New Haven, Connecticut, United States

Full record on ClinicalTrials.gov

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