Development of a Community Engagement Activity for Advance Care Planning

Completed · Not applicable

Conditions studied: Chronic Disease

In brief

This study will determine the feasibility of using an end-of-life conversation game (called "My Gift of Grace") as a community engagement activity series to help caregivers, patients with chronic illness, and/or their families perform advance care planning.

Key facts

Study ID

NCT02575417

Run by

Milton S. Hershey Medical Center

People needed

93

Starts

2015-08-01

Expected to finish

2016-11-01

Last updated by the study team

2020-10-14

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Participants are eligible to participate if they fall into at least one of the following three groups:
• CAREGIVER criteria include:
• are 18 years or older
• speak and read English
• have been an unpaid caregiver for an adult over the age of 18 in the last 12 months. Being an unpaid caregiver may include helping with personal needs or household chores, managing a person's finances, arranging for outside services, or visiting regularly to see how they are doing. This person need not live with participants in order for them to identify as caregivers;
• are able to sit for about 2.5-3 hours
• are able to focus on the game for about 1.5-2 hours
• can complete required survey
• care recipient is capable of discussing medical issues
• care recipient has not completed an AD in past 18 months
• PATIENT criteria include:
• are 18 years or older
• speak and read English
• have at least one chronic illness (cancer, chronic pulmonary disease, coronary artery disease, congestive heart failure, peripheral vascular disease, severe chronic liver disease, diabetes with end organ damage, renal failure-defined using Iezonnis' ICD-9 criteria67)
• have not completed an advance directive within the past 18 months
• are able to sit for about 2.5-3 hours
• are able to focus on the game for about 1.5-2 hours
• can complete required surveys
• SURROGATE DECISION MAKERS FOR PATIENTS WITH CHRONIC ILLNESS criteria include:
• considers themselves a surrogate decision maker for an adult with a chronic illness (defined above)
• are 18 years or older
• speak and read English
• are able to sit for about 2.5-3 hours
• are able to focus on the game for about 1.5-2 hours
• can complete required surveys

You may not qualify if…

• Do not fall into any of the three categories above
• Have a diagnosis of dementia (by self-report or chart review)
• Fall into the Surrogate Decision Maker category but the patient cannot also participate in the same study session

Where it is running

• Penn State Hershey College of Medicine — Hershey, Pennsylvania, United States

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.