Quality of Life (QOL) Registry for Patients With AL Amyloidosis

Completed

Conditions studied: AL Amyloidosis, Amyloidosis

In brief

This is an online registry to document the psychometric properties of SF-36v2 among patients with AL Amyloidosis, to document patients' burden of disease, to better understand the patient's experience and to follow quality of life issues using a variety of QOL measures.

Key facts

Study ID

NCT02574676

Run by

Prothena Biosciences Ltd.

People needed

343

Starts

2015-10-01

Expected to finish

2018-07-01

Last updated by the study team

2019-04-09

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Patients must have AL Amyloidosis

Where it is running

• Online registry — South San Francisco, California, United States

Full record on ClinicalTrials.gov

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