Family Caregiving Role Adjustment and Dyadic Mutuality
Completed
Conditions studied: Family Caregiver and Patient Mutual Negotiation of Roles and Responsibilities
In brief
Background: Cancer causes changes in the lives of patients and in the lives of their caregivers. Patients and caregivers feel stress and they affect each other as they deal with these changes. They each cope with cancer diagnosis and treatment on their own. They also cope together. Researchers want to explore this shared change of roles and responsibilities. They will do this by gaining insight into the social experience of cancer caregiving. They also want to better understand the ways caregiver/patient teams manage the cancer diagnosis and experience. This can help find new ways to support caregivers and their patients. Objective: To explore the shared change of roles and responsibilities of patients and caregivers by studying the social experience of cancer caregiving. Eligibility: English speakers ages 18 and older who are one of the following: A cancer patients at the NIH Clinical Center (CC) A caregiver of a CC cancer patient Design: Participants will have been screened by the CC. Patients and caregivers will be interviewed separately. This will last up to an hour and a half. Participants will complete online surveys. Participants may have a follow-up phone interview. This will last up to 15 minutes.
Key facts
- Study ID
- NCT02566174
- Run by
- National Institutes of Health Clinical Center (CC)
- People needed
- 24
- Starts
- 2015-10-01
- Expected to finish
- 2019-09-18
- Last updated by the study team
- 2019-12-16
Who can join
Age: 18 and older, up to 100. Sex: any. Healthy volunteers: not accepted.
You may not qualify if…
- Patient participants will be excluded if under age 18, are not fully aware of diagnosis and treatment, if they are not a spouse or partner , (including non-traditional partner), significant other, family member or friend, if they are unable to participate in a verbal interview (either face to face or by phone) or are unable to read
- or write English. A patient who has enrolled with one caregiver cannot enroll with another caregiver. A single caregiver must be identified for the duration of the protocol.
- Caregiver Participants will be excluded if they are under age 18, are not the designated person identified by the care recipient as being most involved in their care, and if they are not a spouse or partner , (including non-traditional partner), significant other, family member or friend, if they are unable to participate in a verbal interview (either by face to face or by phone), or are unable to read or write English.
Where it is running
- National Institutes of Health Clinical Center, 9000 Rockville Pike — Bethesda, Maryland, United States
Full record on ClinicalTrials.gov
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