Hairy Cell Leukemia Patient Data Registry
Recruiting now
Conditions studied: Leukemia, Other
In brief
The overall objective is to develop a clinical data registry that can be used to facilitate research with the ultimate goal of reducing the morbidity and/or mortality and improving the quality of life of patients diagnosed or living with hairy cell leukemia. With approximately 1,000 new cases of this rare disease identified in the US each year, HCL represents 2% of all cases of leukemia in adults. Considering the rarity of this chronic leukemia, the Hairy Cell Leukemia Foundation (HCLF), in partnership with investigators from its Centers of Excellence, seeks to develop a registry to help researchers identify new trends in outcomes, recognize the most effective treatments, discover previously unknown complications of the disease, and design clinical trials for new therapies.
Key facts
- Study ID
- NCT02560883
- Run by
- Ohio State University Comprehensive Cancer Center
- People needed
- 5000
- Starts
- 2013-01-02
- Expected to finish
- 2030-12-31
- Last updated by the study team
- 2026-07-02
Who can join
Age: 18 and older. Sex: any. Healthy volunteers: not accepted.
Where it is running
- University of Miami/Soffer Clinical Research Center — Miami, Florida, United States (enrolling)
- Mount Sinai Medical Center of Florida — Miami Beach, Florida, United States (enrolling)
- Mayo Clinic — Rochester, Minnesota, United States (enrolling)
- University of Rochester /Wilmot Cancer Institute — Rochester, New York, United States (enrolling)
- Ohio State University Comprehensive Cancer Center — Columbus, Ohio, United States (enrolling)
- Peter MacCallum Cancer Center — Melbourne, Victoria, Australia (enrolling)
- BC Cancer, Part of the Provincial Health Services Authority — Vancouver, Britsh Columbia, Canada (enrolling)
- Cancer Care Manitoba — Winnipeg, Manitoba, Canada (enrolling)
Full record on ClinicalTrials.gov
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