Exercise in Genetic Cardiovascular Conditions

Completed

Conditions studied: Hypertrophic Cardiomyopathy, Long QT Syndrome

In brief

The goal is to determine how lifestyle and exercise impact the well-being of individuals with hypertrophic cardiomyopathy (HCM) and long QT syndrome (LQTS). Ancillary study Aim: To understand how the coronavirus epidemic is impacting psychological health and quality of life in the LIVE population

Key facts

Study ID

NCT02549664

Run by

Yale University

People needed

4299

Starts

2015-05-01

Expected to finish

2022-11-14

Last updated by the study team

2023-09-05

Who can join

Age: 8 and older, up to 60. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Individuals with Hypertrophic Cardiomyopathy or Long QT Syndrome

You may not qualify if…

• Individuals with Hypertrophic Cardiomyopathy with systolic or diastolic heart failure which precludes vigorous exercise will not be enrolled (NYHA III/IV)

Where it is running

• University of Arizona — Tucson, Arizona, United States
• University of California Irvine — Orange, California, United States
• University of California, San Diego (Rady's Children's Hospital) — San Diego, California, United States
• Stanford — Stanford, California, United States
• Yale University — New Haven, Connecticut, United States
• Children's National — Washington D.C., District of Columbia, United States
• Miami Children's (Nicklaus Children's Hospital) — Miami, Florida, United States
• Lurie Children's — Chicago, Illinois, United States
• Indiana University — Indianapolis, Indiana, United States
• University of Iowa — Iowa City, Iowa, United States
• University of Louisville — Louisville, Kentucky, United States
• Johns Hopkins — Baltimore, Maryland, United States
• Tufts — Boston, Massachusetts, United States
• Boston Children's — Boston, Massachusetts, United States
• Brigham & Women's — Boston, Massachusetts, United States
• University of Michigan — Ann Arbor, Michigan, United States
• Mayo Clinic — Rochester, Minnesota, United States
• Children's Omaha — Omaha, Nebraska, United States
• NYU — New York, New York, United States
• Cincinnati Children's — Cincinnati, Ohio, United States
• Cleveland Clinic — Cleveland, Ohio, United States
• Oregon Health & Science — Portland, Oregon, United States
• Children's Hospital of Philadelphia (CHOP) — Philadelphia, Pennsylvania, United States
• University of Pittsburgh — Pittsburgh, Pennsylvania, United States
• Vanderbilt University — Nashville, Tennessee, United States

Full record on ClinicalTrials.gov

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