The EUROSCA Natural History Study
Recruiting now
Conditions studied: Spinocerebellar Ataxia
In brief
The key goals of EUROSCA-NHS is to determine and compare the rate of disease progression in SCA1, SCA2, SCA3 and SCA6 including determination of the order and occurrence of non-ataxia symptoms, assessment of activities of daily living (ADL) and quality of life (QoL), and identification of predictors of disease progression and survival.
Key facts
- Study ID
- NCT02440763
- Run by
- Ataxia Study Group
- People needed
- 400
- Starts
- 2005-07-01
- Expected to finish
- 2050-07-01
- Last updated by the study team
- 2017-06-29
Who can join
Age: 18 and older. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- Progressive, otherwise unexplained ataxia
- Positive genetic testing for SCA1, SCA2, SCA3, and SCA6
- Written informed consent by the patient or his legal agent
You may not qualify if…
- None.
Where it is running
- Department of Neurology, University of Bonn — Bonn, Germany (enrolling)
- Université Libre de Bruxelles (ULB), Neurology Service - ULB Hôpital Erasme, ULB Laboratory of Experimental Neurology — Brussels, Belgium
- Hôpital de la Pitié-Salpêtrière, Département de Génétique — Paris, France
- Department of Neurology, St. Josef Hospital, University Hospital of Bochum — Bochum, Germany
- Department of Neurology, University Clinic Essen, University of Duisburg-Essen — Essen, Germany
- Department of Neurology, University of Frankfurt — Frankfurt, Germany
- Department of Neurodegeneration and Hertie-Institute for Clinical Brain Research, University of Tübingen — Tübingen, Germany
- Department of Medical Genetics, University of Pecs — Pécs, Hungary
- Department of Neurology, Zala County Hospital — Zalaegerszeg, Hungary
- Fondazione-IRCCS Istituto Neurologico Carlo Besta — Milan, Italy
- Department of Neuroscience, Federico II University Naples — Naples, Italy
- Radboud University Medical Center, Department of Neurology, Donders Institute for Brain, Cognition, and Behaviour — Nijmegen, Netherlands
- Institute of Psychiatry and Neurology — Warsaw, Poland
- University Hospital Marqués de Valdecilla (IDIVAL), University of Cantabria — Santander, Spain
- Department of Neurology, Medical University, Innsbruck — Innsbruck, Austria
- Institute of Neurology — London, United Kingdom
Full record on ClinicalTrials.gov
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