Relationship Between Psychosocial Factors, Health Literacy, Quality of Life and Satisfaction With Medical Visits in Adults With NF

Completed

Conditions studied: Neurofibromatosis

In brief

This is a prospective study through the NF clinic at Massachusetts General Hospital that will examine the relationship between psychosocial factors, health literacy, and satisfaction with the medical visit in adults with NF1, NF2, and Schwannomatosis. A total of 89 participants will be enrolled in the study.

Key facts

Study ID

NCT02435628

Run by

Massachusetts General Hospital

People needed

86

Starts

2015-02-01

Expected to finish

2016-09-01

Last updated by the study team

2017-04-04

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Age 18 or older
• Can read and speak English at or above the 6th grade level
• Diagnosis of neurofibromatosis type 1, neurofibromatosis type 2, or schwannomatosis

You may not qualify if…

• Severe active or untreated major mental illness that would interfere with study participation, to be determined at the discretion of the study investigator (e.g. untreated psychosis or suicidality)
• Unable or unwilling to participate
• Unable or unwilling to complete psychological assessments online via the REDCap or Assessment Center systems.

Where it is running

• Massachusetts General Hospital — Boston, Massachusetts, United States

Full record on ClinicalTrials.gov

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