An Analysis of the Symptomatic Domains Most Relevant to Charcot Marie Tooth Neuropathy (CMT) Patients

Completed

Conditions studied: Charcot Marie Tooth Disease (CMT), Hereditary Sensory and Motor Neuropathy, Nerve Compression Syndromes, Tooth Diseases, Congenital Abnormalities, Genetic Diseases, Inborn, Heredodegenerative Disorders, Nervous System

In brief

The purpose of this study is to identify the issues that have greatest impact on QOL for patients with Charcot Marie Tooth (CMT) Disease. Patients who have -registered in the Inherited Neuropathies Consortium Contact Registry will be invited to participate.

Key facts

Study ID

NCT02429947

Run by

University of South Florida

People needed

411

Starts

2012-07-01

Expected to finish

2013-06-01

Last updated by the study team

2017-06-14

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Patients with CMT that are 18 years or older and have joined the INC RDCRN Contact Registry.

You may not qualify if…

• Does not have CMT.
• Does not read or speak English.

Where it is running

• RDCRN Data Management and Coordinating Center , Epidemiology Center; University of South Florida — Tampa, Florida, United States

Full record on ClinicalTrials.gov

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