Observational Study of Pediatric Rheumatic Diseases: The CARRA Registry

Recruiting now

Conditions studied: Rheumatic Joint Disease

In brief

Continuation of the CARRA Registry as described in the protocol will support data collection on patients with pediatric-onset rheumatic diseases. The CARRA Registry will form the basis for future CARRA studies. In particular, this observational registry will be used to answer pressing questions about therapeutics used to treat pediatric rheumatic diseases, including safety questions.

Key facts

Study ID

NCT02418442

Run by

Duke University

People needed

20000

Starts

2015-07-01

Expected to finish

2028-12-01

Last updated by the study team

2025-10-14

Who can join

Age: any, up to 21. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Onset of rheumatic disease prior to age 16 years for JIA and onset prior to age 19 years for all other rheumatic diseases (see appendix A).
• Subject (and/or parent/legal guardian when required) is able to provide written informed consent and willing to comply with study procedures.
• Subject and/or parent/legal guardian is willing to be contacted in the future by study staff.

You may not qualify if…

• Greater than 21 years of age at the time of enrollment.

Where it is running

• University of Michigan — Ann Arbor, Michigan, United States (enrolling)
• University of Alabama at Birmingham — Birmingham, Alabama, United States (enrolling)
• Massachusetts General Hospital for Children — Boston, Massachusetts, United States (enrolling)
• Boston Children's Hospital — Boston, Massachusetts, United States (enrolling)
• Rady Children's Hospital San Diego — San Diego, California, United States (enrolling)
• University of California at San Francisco Medical Center — San Francisco, California, United States (enrolling)
• The Children's Hospital of Colorado — Aurora, Colorado, United States (enrolling)
• Mattel Children's Hospital at University of California Los Angeles — Los Angeles, California, United States (enrolling)
• Stanford University Medical Center — Palo Alto, California, United States (enrolling)
• Phoenix Children's Hospital — Phoenix, Arizona, United States (enrolling)
• University of Florida - Shand's Children's Hospital — Gainesville, Florida, United States (enrolling)
• Nicklaus Children's Hospital — Miami, Florida, United States (enrolling)
• Nemours Children's Hospital — Orlando, Florida, United States (enrolling)
• Johns Hopkins All Children's Hospital — St. Petersburg, Florida, United States (enrolling)
• Emory Children's Center — Atlanta, Georgia, United States (enrolling)
• Georgia Regents University Medical Center — Augusta, Georgia, United States (enrolling)
• Connecticut Children's Medical Center — Hartford, Connecticut, United States (enrolling)
• Ann & Robert H. Lurie Children's Hospital of Chicago — Chicago, Illinois, United States (enrolling)
• University of Chicago Medical Center — Chicago, Illinois, United States (enrolling)
• Indiana University School of Medicine — Indianapolis, Indiana, United States (enrolling)
• The University of Iowa Hospitals and Clinics (University of Iowa Children's Hospital) — Iowa City, Iowa, United States (enrolling)
• Childrens National Medical Center — Washington D.C., District of Columbia, United States (enrolling)
• University of Louisville Schoole of Medicine — Louisville, Kentucky, United States (enrolling)
• Tufts Medical Center — Boston, Massachusetts, United States (enrolling)
• Helen Devos Children's Hospital — Grand Rapids, Michigan, United States (enrolling)

Full record on ClinicalTrials.gov

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