Bone Health in Facioscapulohumeral Muscular Dystrophy

Completed

Conditions studied: Facioscapulohumeral Muscular Dystrophy

In brief

This is a cross-sectional single visit study to determine bone health in individuals with FSHD.

Key facts

Study ID

NCT02413190

Run by

Hugo W. Moser Research Institute at Kennedy Krieger, Inc.

People needed

94

Starts

2014-07-01

Expected to finish

2016-08-01

Last updated by the study team

2019-11-05

Who can join

Age: 18 and older, up to 100. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Genetic diagnosis of FSHD including chromosome 4 deletion and haplotype
• Age > 18 years
• Ability to provide written informed consent for participation in the study
• Ability to participate in the DEXA scan

You may not qualify if…

• Unwillingness or inability to comply with the requirements of this protocol (in the opinion of the PI) including, but not limited to, the presence of any condition (physical, mental or social) that precludes the participant from comfortably and safely obtaining a DEXA scan, phlebotomy, or neurological examination

Where it is running

• Kennedy Krieger Institute, Johns Hopkins School of Medicine — Baltimore, Maryland, United States
• Concord Hospital Neurology Department, Hospital Road, Concord NSW 2139 — Sydney, Australia

Full record on ClinicalTrials.gov

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