MIND: Care Coordination for Community-living Person With Dementia

Completed · Not applicable

Conditions studied: Dementia, Caregiver Burden

In brief

This is a 24-month, prospective, single- blind, randomized controlled trial evaluating the MIND at Home-streamlined dementia care coordination intervention (called MIND-S) in a cohort of 300 community-living persons with dementia and their family caregivers in the Greater Baltimore area. Participants receiving MIND-S will get 18 months of care coordination by an interdisciplinary team comprised of trained memory care coordinators (non-clinical), a psychiatric nurse, and geriatric psychiatrist. The intervention involves 4 key components: identification of needs and individualized care planning (persons with dementia (PWD) and care giver (CG) needs); dementia education and skill building; coordination, referral and linkage of services; and care monitoring.Participants in the comparison group will receive an initial in-home needs assessment and will be given the written results along with any recommendations for care that are indicated.

Key facts

Study ID

NCT02396082

Run by

Johns Hopkins University

People needed

300

Starts

2014-08-01

Expected to finish

2020-04-01

Last updated by the study team

2021-07-16

Who can join

Age: 21 and older, up to 120. Sex: any. Healthy volunteers: not accepted.

You may not qualify if…

• Planned move from home in less than 6 months
• On hospice or has end stage disease (bed-bound and non-communicative)
• Enrolled in another clinical trial for dementia or associated symptoms

Where it is running

• Johns Hopkins University — Baltimore, Maryland, United States

Full record on ClinicalTrials.gov

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