Resiliency Training for Adolescent Neurofibromatosis Patients Via Videoconferencing With Skype

Completed · Not applicable

Conditions studied: Neurofibromatoses

In brief

The aim of this research is to adapt the NF-specific adult version of the Skype 3RP for use with adolescents, and to test its feasibility, acceptability, and preliminary effect in improving quality of life, and in decreasing stress and psychological distress.

Key facts

Study ID

NCT02387177

Run by

Massachusetts General Hospital

People needed

51

Starts

2015-01-01

Expected to finish

2017-12-01

Last updated by the study team

2018-08-17

Who can join

Age: 12 and older, up to 17. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Must be between the ages of 12 and 17
• Can read and speak English at or above the 6th grade level
• Diagnosis of neurofibromatosis type 1 or neurofibromatosis type 2 by a specialized medical provider

You may not qualify if…

• Severe active or untreated major mental illness that would interfere with study participation, to be determined at the discretion of the study investigator (e.g. untreated psychosis or suicidality)
• Recent (within past 3 months) change in antidepressant medication
• Use of formal relaxation training (including past participation in a mind-body program), currently or in the past 6 months
• Unable or unwilling to sign the informed consent documents
• Unable or unwilling to participate in an intervention delivered via videoconferencing with Skype

Where it is running

• Massachusetts General Hospital — Boston, Massachusetts, United States

Full record on ClinicalTrials.gov

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