Swiss National Registry of Adults With Congenital Heart Disease

Recruiting now

Conditions studied: Congenital Heart Disease, Congenital Heart Defect

In brief

Due to successes in the last decades in pediatric heart surgery and cardiology, 90-95% of the children with congenital heart disease reach adult age.This results in an increasing number of adults or "grown-ups" with congenital heart disease (ACHD or GUCH patients) that require special health care organization and training programmes. Long term complications of these GUCH patients and optimum treatment strategies are still poorly known. The aim of this registry is to collect quantitative and qualitative data regarding GUCH patients treated in specialised centres in Switzerland.

Key facts

Study ID

NCT02258724

Run by

University Hospital, Basel, Switzerland

People needed

5000

Starts

2013-09-01

Expected to finish

2033-12-01

Last updated by the study team

2026-05-04

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Adult (above 18 years of age) with congenital heart disease, treated in one of the Swiss centre with specialized organisation for GUCH patients.
• Signed informed consent. Patients with trisomy 21: the parents or legal guardian will have to give the consent.

You may not qualify if…

• None

Where it is running

• Basel University Hospital — Basel, Switzerland (enrolling)
• Bern University Hospital Inselspital — Bern, Switzerland (enrolling)
• Hôpitaux Universitaires de Genève HUG — Geneva, Switzerland (enrolling)
• Centre Hospitalier Universitaire Vaudois CHUV — Lausanne, Switzerland (enrolling)
• Kantonsspital St.Gallen — Sankt Gallen, Switzerland (enrolling)
• University Hospital Zurich — Zurich, Switzerland (enrolling)

Full record on ClinicalTrials.gov

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