Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry

Recruiting now

Conditions studied: Pulmonary Vascular Disease, Pulmonary Arterial Hypertension

In brief

Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.

Key facts

Study ID

NCT02249923

Run by

New York Medical College

People needed

2500

Starts

2014-10-01

Expected to finish

2031-12-01

Last updated by the study team

2025-03-13

Who can join

Age: 0 and older, up to 21. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• The subject's age of onset of pulmonary hypertension must be prior to age 18 years
• The person providing consent must be able to read either Spanish or English.
• The subject (and/or parent/legal guardian) must be able to provide informed consent

You may not qualify if…

• Diagnosed with pulmonary hypertension after age 18
• Refusal to sign informed consent

Where it is running

• Stanford University Medical Center — Palo Alto, California, United States (enrolling)
• University California San Francisco — San Francisco, California, United States (enrolling)
• Children's Hospital Colorado — Aurora, Colorado, United States (enrolling)
• Johns Hopkins All Children's Heart Institute — St. Petersburg, Florida, United States (enrolling)
• Johns Hopkins Children's Center — Baltimore, Maryland, United States (enrolling)
• Boston Children's Hospital — Boston, Massachusetts, United States (enrolling)
• Columbia University Medical Center — New York, New York, United States (enrolling)
• Seattle Children's Hospital — Seattle, Washington, United States (enrolling)
• University of Alberta Edmonton — Edmonton, Alberta, Canada (enrolling)
• Cincinnati Children's Hospital Medical Center — Cincinnati, Ohio, United States (enrolling)
• Children's Hospital of Philadelphia — Philadelphia, Pennsylvania, United States (enrolling)
• Vanderbilt University Medical Center — Nashville, Tennessee, United States (enrolling)
• Maria Fareri Children's Hospital at WMC Health/Westchester Medical Center — New York, New York, United States
• Texas Children's — Houston, Texas, United States

Full record on ClinicalTrials.gov

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