Modifiable Variables in Parkinsonism (MVP)

Recruiting now

Conditions studied: Parkinson's Disease, Parkinsonism, MSA - Multiple System Atrophy, Progressive Supranuclear Palsy, Shy-Drager Syndrome, Corticobasal Degeneration, Dementia With Lewy Bodies, Pick Disease, Olivopontocerebellar Atrophies

In brief

We are trying to identify factors associated with improved quality of life and fewer PD symptoms. We are attempting to identify practices, beliefs, and therapies used by individuals who report excellent quality of life, few PD symptoms, and reduced rates of progression. After agreeing to participate, we will ask participants to fill our questionnaires about their experience with PD, their health in general, along with their food intake every six months for five years.

Key facts

Study ID

NCT02194816

Run by

Bastyr University

People needed

2000

Starts

2012-09-01

Expected to finish

2030-12-01

Last updated by the study team

2022-03-25

Who can join

Age: 19 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Parkinson's disease (PD)
• Parkinsonism
• Parkinson-plus syndromes (e.g. Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal degeneration (CBGD), Dementia with Lewy bodies)
• Must have online access, an email address, basic computer literacy
• Must be willing to complete online surveys every 6 months for 5 years

You may not qualify if…

• Inability to read/write English
• Inability or unwillingness to complete surveys every six (6) months (\~90 min)

Where it is running

• Bastyr University — Kenmore, Washington, United States (enrolling)

Full record on ClinicalTrials.gov

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