Assessment of the Educational Experiences for Patients Newly Diagnosed With Nephrotic Syndrome

Completed

Conditions studied: Nephrotic Syndrome

In brief

The purpose of this study is to learn about patient, caregiver and healthcare worker perspectives on educating patients with newly-diagnosed Nephrotic Syndrome. All patients enrolled in the Contact Registry with Nephrotic Syndrome will be invited via email to participate in this study.

Key facts

Study ID

NCT02190955

Run by

University of South Florida

People needed

186

Starts

2013-01-01

Expected to finish

2014-05-01

Last updated by the study team

2014-07-15

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Patient and Patient Caregiver:
• 18 years or older
• English literate
• History of Nephrotic Syndrome > 3 months or caregiver of a child diagnosed with Nephrotic Syndrome > 3 months prior to enrollment
• Informed Consent
• Healthcare Worker Inclusion Criteria:
• Age > 18 years
• English literate
• Provides medical care for children or adults with Nephrotic Syndrome
• Informed Consent

You may not qualify if…

• Inability to provide informed consent and complete survey
• Other criteria as specified by Consortium and based on the data we collect in the Contact Registry

Where it is running

• University of South Florida Data Management and Coordinating Center — Tampa, Florida, United States

Full record on ClinicalTrials.gov

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