Educational Needs of Patients With Systemic Vasculitis

Completed

Conditions studied: Behcet's Disease, Churg-Strauss Syndrome, Vasculitis, Central Nervous System, Giant Cell Arteritis, Wegener Granulomatosis, Henoch-Schoenlein Purpura, Microscopic Polyangiitis, Polyarteritis Nodosa, Takayasu's Arteritis

In brief

A cross-sectional study design and online questionnaire was used to assess the informational needs of patients with several different types of systemic vasculitis. Patients were recruited from within the Vasculitis Clinical Research Consortium (VCRC) online Patient Contact Registry1. Survey responses from participants in the VCRC Patient Contact Registry were compared to responses from a similar survey recently administered to patients within a United Kingdom (UK) based vasculitis support group (Vasculitis UK).

Key facts

Study ID

NCT02190929

Run by

University of South Florida

People needed

386

Starts

2012-03-01

Expected to finish

2014-02-01

Last updated by the study team

2014-07-15

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Enrolled in the VCRC Contact Registry
• Patient reported diagnosis of Behçets disease, Churg-Strauss Syndrome, CNS Vasculitis, Giant Cell Arteritis, granulomatosis with polyangiitis (Wegener's granulomatosis), Henoch-Schöenlein Purpura, Microscopic Polyangiitis, Polyarteritis Nodosa, Takayasu's Arteritis.
• 18 years of age or older
• English speaking

You may not qualify if…

• Inability to provide informed consent and complete survey

Where it is running

• University of South Florida Data Management Coordinating Center — Tampa, Florida, United States

Full record on ClinicalTrials.gov

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