Discharge to Home and Chronic Illness Care Pilot

Completed · Not applicable

Conditions studied: Solid Organ Transplant

In brief

The purpose of this study is to address a gap in knowledge needed for care of children with solid organ transplantation (SOT) and their parents by combining mHealth technology with an individualized family centered self-management intervention (referred to as myFAMI). This study is critical to the increased understanding of hospital to home transition and family management at home with the potential to transform the way clinicians approach the care of complex chronic illness children and families.

Key facts

Study ID

NCT02165423

Run by

Medical College of Wisconsin

People needed

20

Starts

2014-06-01

Expected to finish

2018-10-01

Last updated by the study team

2019-03-07

Who can join

Age: 18 and older, up to 90. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• parent's child has undergone a heart, kidney, or liver transplant and is being discharged home from the hospital
• the parent is English speaking (to date the tools being used have been validated for English participants only)
• parent is 18 years of age or older
• patient is 17 years of age and younger.

You may not qualify if…

• presence of significant communication or cognitive impairment on the part of the parent that would preclude completion of questionnaires based on self-report
• parent and child has experienced the discharge to home transition from a previous transplant.

Where it is running

• Children's Hospital of Wisconsin — Milwaukee, Wisconsin, United States

Full record on ClinicalTrials.gov

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