Health-related Quality of Life in Rare Kidney Stone

Completed

Conditions studied: Primary Hyperoxaluria, Cystinuria, Adenine Phosphoribosyl Transferase Deficiency, Dent Disease

In brief

Assessment of Health-related Quality of Life in Rare Kidney Stone Formers in the Rare Kidney Stone Consortium

Key facts

Study ID

NCT02124395

Run by

NYU Langone Health

People needed

365

Starts

2013-08-01

Expected to finish

2022-07-01

Last updated by the study team

2022-09-02

Who can join

Age: 5 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Qualify to participate in one of the Rare Kidney Stone Registries.
• Be at least 5 years old (for SF-10)
• Are able to communicate using the English language
• Consent to participate in the study (or "assent" if under 18 years old)
• Have internet access with an email account or a valid home address

You may not qualify if…

• None, if inclusion criteria are met

Where it is running

• Primary Hyperoxaluria and Dent Disease Registry - Mayo Clinic — Rochester, Minnesota, United States
• New York University School of Medicine - Cystinuria Registry — New York, New York, United States
• APRT Registry - Landspitali Universtiy Hospital — Reykjavik, Iceland

Full record on ClinicalTrials.gov

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