Caring for Caregivers: Supporting Caregivers of Youth With Spinal Cord Injury

Completed · Not applicable

Conditions studied: Spinal Cord Injuries

In brief

The current study will implement and evaluate a multi-component, psychoeducational intervention for caregivers of children with spinal cord injury (SCI) ages 7-12. Two hypotheses will be tested. First, caregivers who participate in the intervention group will demonstrate better outcomes than caregivers in the control group. Second, children with SCI whose caregivers participate in the intervention group will demonstrate better outcomes than children with SCI whose caregivers participate in the control group.

Key facts

Study ID

NCT02083601

Run by

Erin Hayes Kelly, PhD

People needed

53

Starts

2014-04-01

Expected to finish

2016-12-01

Last updated by the study team

2018-04-24

Who can join

Age: 7 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Primary caregivers of youth with SCI ages 7-12 years.
• Youth sustained their SCI at least one year ago.
• Both the caregiver and child are able to speak English.
• Both the caregiver and child are able and willing to sign informed consent/assent and Health Insurance Portability and Accountability Act (HIPAA) compliant research authorization.

You may not qualify if…

• Caregiver or child has significant cognitive limitations and/or psychiatric comorbidities. These conditions will be identified by a clinical psychologist or physician.

Where it is running

• Shriners Hospitals for Children — Chicago, Illinois, United States

Full record on ClinicalTrials.gov

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