Home Parenteral Nutrition (HPN) Families' Mobile Distance Connections to Care Research

Completed · Not applicable · Has a placebo group

Conditions studied: Short Bowel Syndrome, Malabsorption, Malnutrition

In brief

The purpose of this study is to test Mobile Technologies in Assisting Patients \& Family Caregivers in Healthy Living and complex home care by connecting to information and professionals from a distance.

Key facts

Study ID

NCT01900288

Run by

University of Kansas Medical Center

People needed

121

Starts

2012-08-01

Expected to finish

2016-12-23

Last updated by the study team

2017-01-27

Who can join

Age: 13 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• 13 years or older total parenteral nutrition (TPN) patients/users and family members/caregivers (defined as those individuals involved in daily home HPN care)
• TPN users (also called HPN users) must be receiving intravenous nutrition for a non-malignant short bowel disorder
• Read, write, speak English and provide informed consent
• Be able to participate in group clinic visits

You may not qualify if…

• enteral nutrition dependency only
• less than 13 years of age
• 13 through 17 years of age without parental consent
• currently enrolled in an intervention study or HPN management program
• severe cognitive impairment
• disability disorders (e.g. blindness which cannot be accommodated for active participation in the group clinics

Where it is running

• University of Kansas Medical Center — Kansas City, Kansas, United States

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.