Aspiring to Awesome- Patient Preference Privacy Selections in EMR
Completed
Conditions studied: Sexually Transmitted Diseases
In brief
Health information technology, including health information exchange, offers the potential to improve care by providing an integrated view of relevant, integrated patient information from multiple health care providers practicing in multiple sites. However, realizing that potential can be difficult, particularly with respect sensitive information. Increasingly, patients, patient advocate groups, and even the National Coordinator for Health Information Technology are pushing for patients to have more granular control over specifically who can see what personal health information in their electronic health records. This will be a demonstration project aimed at showing the initial feasibility a system allowing patient controls on their electronic health records. Because of the exploratory nature of the research, the investigators do not have specific hypotheses. The investigators hope that this demonstration and feasibility project will lead to more extensive prospective evaluations of patient control of access to their health records and other tools for enhancing patient control over access to their health records.
Key facts
- Study ID
- NCT01862133
- Run by
- Indiana University
- People needed
- 136
- Starts
- 2013-08-01
- Expected to finish
- 2014-03-01
- Last updated by the study team
- 2018-01-19
Who can join
Age: 18 and older. Sex: any. Healthy volunteers: accepted.
You may qualify if…
- For Patients:
- all adults 18 years or older who were fluent in English and had visited the study primary care clinic at least twice in the previous year
- For Providers:
- all personnel of all types practicing in General Medicine Clinic, both Firms A and B, on the 4th floor of Wishard's Primary Care Center. For those physicians who agree to participate, attempted to recruit 10 patients who had visited their primary care physician at least twice in the previous 1 year.
You may not qualify if…
- will be lack of English fluency and inability to communicate due to physiologic or cognitive difficulties.
Where it is running
- Wishard Health Services, Primary Care Center — Indianapolis, Indiana, United States
Full record on ClinicalTrials.gov
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