Intervention to Increase Parent-provider Communication During Referrals
Completed · Not applicable
Conditions studied: Parent-Provider Communication
In brief
The overall goal of this three-year study is to adapt and test a brief, feasible intervention using a communication tool and brief parent coaching to increase the capability of parents of children and youth with special health care needs to exchange and use medical information in partnership with their child's physicians when their children require sub-specialty referral. We hypothesize that the use of tools to coordinate referrals between physicians and parents will facilitate increased communication between primary care physicians(PCPs) and specialists, and that parents trained in information exchange and care planning will experience increased self-efficacy in interacting with their child's physicians. There are two primary aims of the study. The first aim is to adapt a joint parent-provider referral communication and care planning intervention (i.e., the 'referral care plan') for use with ethnically diverse populations in an electronic communication environment, and optimize its usability in the practice setting. The second aim is to test the referral care plan in nine pediatric primary care and subspecialty practices in two states, using a stepped wedge cluster randomized trial, to evaluate its effect on communication, parent self-efficacy, and patient outcomes.
Key facts
- Study ID
- NCT01797497
- Run by
- University of Colorado, Denver
- People needed
- 97
- Starts
- 2013-03-01
- Expected to finish
- 2015-02-01
- Last updated by the study team
- 2016-07-19
Who can join
Age: 0 and older, up to 17. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- Parents of children aged 0-17, AND
- Parents of children with a chronic health condition, AND
- Parents whose children are receiving a NEW referral to a pediatric neurologist, gastroenterologist, cardiologist, or pulmonologist
You may not qualify if…
- Parents of children 18 and older
- Parents of children without a chronic health condition
- Parents of children who are not receiving a referral, or who are receiving a referral to a different sub-specialty
Where it is running
- University of Colorado Denver — Denver, Colorado, United States
- University of Oklahoma Health Sciences Center — Oklahoma City, Oklahoma, United States
Full record on ClinicalTrials.gov
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