The National Amyotrophic Lateral Sclerosis Registry

Recruiting now

Conditions studied: Amyotrophic Lateral Sclerosis

In brief

The purpose of this registry is to (A) better describe the incidence and prevalence of Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors, such as environmental and occupational, that may be associated with the disease; (C) better outline key demographic factors (such as age, race or ethnicity, gender, and family history of individuals who are diagnosed with the disease) associated with the disease; and (D) better examine the connection between ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.

Key facts

Study ID

NCT01772602

Run by

Centers for Disease Control and Prevention

People needed

30000

Starts

2010-10-01

Expected to finish

2040-12-01

Last updated by the study team

2026-04-29

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• U.S. citizens 18 years of age or older

Where it is running

• CDC — Atlanta, Georgia, United States (enrolling)

Full record on ClinicalTrials.gov

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