Institutional Registry of Haemorrhagic Hereditary Telangiectasia

Recruiting now

Conditions studied: Haemorrhagic Hereditary Telangiectasia

In brief

The purpose of this study is to create an institutional and population-based registry of Haemorrhagic Hereditary Telangiectasia with a prospective survey based on epidemiological data, risk factors, diagnosis, prognosis, treatment, monitoring and survival. This study will also describe the occurrence of Haemorrhagic Hereditary Telangiectasia in the population of HIBA in the Central Hospital, as well as the characteristics of clinical presentation and evolution.

Key facts

Study ID

NCT01761981

Run by

Hospital Italiano de Buenos Aires

People needed

590

Starts

2010-01-01

Expected to finish

2035-12-01

Last updated by the study team

2026-07-30

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Patients with HHT defined.
• Followed in Unidad HHT of Hospital Italiano de Buenos Aires.

You may not qualify if…

• Denied to participated in the registry or inform consent process.

Where it is running

• Hospital Italiano de Buenos Aires — Buenos Aires, Buenos Aires, Argentina (enrolling)

Full record on ClinicalTrials.gov

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