Study to Education Childhood Cancer Survivors About Survivorship Care

Completed · Not applicable

Conditions studied: Childhood Cancer

In brief

The proposed study is part of a career development award. The first two phases of research involve collaborating with adult survivors of childhood cancer representing both sexes and three ethnic/racial groups (African American, Hispanic, and White). THe collaboration will focus upon developing educational material that is helpful in teaching survivors about health risks related to cancer treatments and about survivorship care. The third phase is a randomized controlled trial that will randomly (like a flip of coin)place survivors into one of two groups. One group will meet in -person with a group leader three times, once each week over three weeks. The other group will receive an information packet that contains websites, books, and resources similar to content provided in-person within a group format to the other group. The goal is to help adult survivors get involved in specialized healthcare so they can remain healthy. This involves getting a copy of their medical record to understand what treatments they received and working with health providers to get an individualized survivorship care plan.

Key facts

Study ID

NCT01742481

Run by

University of Illinois at Chicago

People needed

50

Starts

2010-08-01

Expected to finish

2012-11-01

Last updated by the study team

2016-05-11

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Diagnosed with any childhood cancer excluding CNS prior to age of 18 years
• Completed treatment at least 5 years ago
• Currently cancer free and 18 years or older
• Self-identifies as African American, Hispanic/Latino, or White

You may not qualify if…

• Ever seen for risk-based follow-up care as an adult (18 or older)

Where it is running

• University of Illinois at Chicago — Chicago, Illinois, United States

Full record on ClinicalTrials.gov

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