FAmily CEntered (FACE) Advance Care Planning for Teens With Cancer

Completed · Not applicable

Conditions studied: Cancer

In brief

Advance Care Planning (ACP) prepares patients and their loved ones for future health care decisions, including end-of-life decisions. Yet, the needs of adolescent oncology patients for participation in ACP, despite its priority, is not well studied. Our goal is to test a model of ACP that anticipates these issues, fully empowers the family and adolescent, and keeps the key role of health care professionals central, building on our earlier work. We hypothesized FAmily CEntered (FACE) ACP, would: (1) increase congruence in treatment preferences between adolescents and surrogates; (2) decrease decisional conflict for adolescents; and (3) increase quality of communication compared with controls.

Key facts

Study ID

NCT01670461

Run by

Maureen Lyon

People needed

60

Starts

2009-01-01

Expected to finish

2013-06-01

Last updated by the study team

2019-03-08

Who can join

Age: 14 and older, up to 90. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Age ≥14.0 years and <21.0 years for adolescents at enrollment;
• Age ≥ 21.0 years for surrogates at enrollment;
• IQ > 70 or not known to be developmentally delayed;
• Depression score on Beck Depression Inventory, Second Edition (BDI-II) Total Score < 26;
• Primary language English

You may not qualify if…

• In foster care;
• Developmentally delayed;
• Suicidal or homicidal or psychotic at time of screening;
• Not understand or speak English; and
• Failure on mini mental status exam

Where it is running

• Children's National Medical Center — Washington D.C., District of Columbia, United States

Full record on ClinicalTrials.gov

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