Effectiveness of a Knowledge-based Intervention for Patients With Cutaneous Lupus Erythematosus

Completed · Not applicable

Conditions studied: Cutaneous Lupus Erythematosus

In brief

Studies have shown that there are significant differences in severity and outcome of lupus in patients of colored skin compared with Caucasians. There are many factors that lead to this discrepancy: genetics, poverty, education level, as well as behavioral and cultural factors. Cutaneous Lupus Erythematosus (CLE) is a disease of flares and remissions with identifiable triggers. One of the most aggravating triggers in CLE is sun exposure. The investigators hypothesize that there are disparities in knowledge about photoprotection, leading to poorer outcomes in minority ethnic groups. This study aims to assess knowledge of risk factors and triggers, especially sun exposure, and the effects on quality of life of Caucasian and minority populations, by conducting an assessment survey and subsequent teaching intervention on appropriate skin protection techniques including appropriate sun screen application, and use of sun-protective clothing. After three months a survey to evaluate knowledge retention about and the application of the educational intervention will be conducted.

Key facts

Study ID: NCT01629784
Run by: Northwestern University
People needed: 31
Starts: 2012-05-01
Expected to finish: 2013-01-01
Last updated by the study team: 2013-06-03

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

Subjects with a diagnosis of cutaneous lupus erythematous
Subjects ages 18 years of age and older and able to give consent

You may not qualify if…

That which does not fit the inclusion criteria

Where it is running

Northwestern University Department of Dermatology — Chicago, Illinois, United States

Full record on ClinicalTrials.gov

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