Disability and Quality of Life in Patients With Lymphatic Filariasis in Rural Southern India
Completed
Conditions studied: Lymphatic Filariasis
In brief
According to the World Health Organization, lymphatic filariasis, a mosquito-borne parasitic disease, is the second leading cause of disability worldwide. Across 81 countries, approximately 120 million people are infected with the disease, and of those infected, an estimated 40% reside in India alone. The most disfiguring symptoms of lymphatic filariasis, elephantiasis and lymphedema, cause long-term suffering in patients who are then often embarrassed or even rejected from their communities. Because of the disease's debilitating physical and social effects on patients, this study will explore the intersection of disability and health-related quality of life (HRQoL) in lymphatic filariasis patients in India. Specifically, HRQoL and disability in lymphatic filariasis subjects and age- and gender- matched control subjects will be compared. Two HRQoL tools , the general Dermatology Life Quality Index (DLQI) and a disease-specific instrument developed by a dermatology group in India will be used to gauge HRQol. In addition, the demographic and disease-specific factors associated with HRQoL and disability in filarial lymphedema subjects will be identified.
Key facts
- Study ID
- NCT01629771
- Run by
- Northwestern University
- People needed
- 72
- Starts
- 2012-05-01
- Expected to finish
- 2012-06-01
- Last updated by the study team
- 2014-03-20
Who can join
Age: 18 and older. Sex: any. Healthy volunteers: accepted.
Where it is running
- Northwestern University Department of Dermatology — Chicago, Illinois, United States
- Institute of Applied Dermatology — Kasaragod District, Kerala, India
Full record on ClinicalTrials.gov
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