Parkinson's Foundation Quality Improvement Initiative

Completed

Conditions studied: Parkinson's Disease

In brief

In a recent study it was found that neurologist care for Parkinson's provides a 20% reduction in nursing home placement, hip fracture, and death (Willis 2011). However, as the authors recognized, the investigators don't know what it is about expert care that delivers this benefit. The Parkinson's Foundation's Quality Improvement Initiative was designed to identify the components of great care that yield great outcomes. By capturing demographics, clinical interventions and outcomes over time from multiple centers across the U.S, Canada and internationally, the best care practices from different clinics and different healthcare systems will be analyzed.

Key facts

Study ID

NCT01629043

Run by

National Parkinson Foundation

People needed

13000

Starts

2009-07-01

Expected to finish

2023-07-01

Last updated by the study team

2023-07-14

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Patients diagnosed with idiopathic Parkinson's disease receiving medical care for the diagnosis of idiopathic Parkinson's disease at any of the participating Centers.

You may not qualify if…

• Patients who are not willing or won't be able to give written informed consent.

Where it is running

• Barrow Neurological Institute - Muhammad Ali Parkinson Center — Phoenix, Arizona, United States
• Parkinson's Institute and Clinical Center — Sunnyvale, California, United States
• Georgetown University Hospital — Washington D.C., District of Columbia, United States
• University of Florida Parkinson's Disease and Movement Disorders Center — Gainesville, Florida, United States
• University of Miami Parkinson's Disease and Movement Disorders Center — Miami, Florida, United States
• University of South Florida — Tampa, Florida, United States
• Augusta University — Augusta, Georgia, United States
• Northwestern University Parkinson's Disease and Movement Disorders Center — Chicago, Illinois, United States
• University of Kansas Medical Center Parkinson's Disease and Movement Disorder Center — Kansas City, Kansas, United States
• Johns Hopkins Parkinson's Disease and Movement Disorder Center — Baltimore, Maryland, United States
• Beth Israel Deaconess Medical Center Parkinson's Disease Movement Disorder Center — Boston, Massachusetts, United States
• Struthers Parkinson Center — Golden Valley, Minnesota, United States
• NYU Langone Medical Center — New York, New York, United States
• Mount Sinai School of Medicine Parkinson and movement Disorders Center — New York, New York, United States
• Oregon Health and Science University Parkinson Center — Portland, Oregon, United States
• University of Pennsylvania Parkinson's Disease and Movement Disorder Center — Philadelphia, Pennsylvania, United States
• The Vanderbilt Parkinson Disease Center — Nashville, Tennessee, United States
• Baylor College of Medicine Parkinson Disease Center and Movement Disorders Clinic — Houston, Texas, United States
• University of Alberta — Edmonton, Alberta, Canada
• Centre for Movement Disorders — Markham, Ontario, Canada
• Toronto Western Hospital Movement Disorders Center — Toronto, Ontario, Canada
• McGill University Health Centre — Montreal, Quebec, Canada
• Tel Aviv Sourasky Medical Center — Tel Aviv, Israel
• Parkinson Center Nijmegen at Radboud University Nijmegen Medical Center — Nijmegen, Netherlands

Full record on ClinicalTrials.gov

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