Testing Spanish-language Genetic Literacy
Completed
Conditions studied: Genetic Literacy
In brief
Background: * Health literacy means being able to understand basic health care information. This information can include drug labels and prescription instructions. It can also include doctor s instructions. Better health literacy can help improve a person s health outcomes. * Many minorities have low health literacy. Latinos in particular have both low health literacy and poor health outcomes. Language barriers such as poor reading skills can contribute to problems with health literacy. Researchers want to develop a new health literacy measuring tool. This tool will focus on genetic literacy, which involves understanding personal risk of health problems. The tool will be written in Spanish. The study will work with Spanish-speaking Latinos to develop and test this genetic literacy tool. Objectives: \- To develop a Spanish-language tool to study genetic literacy. Eligibility: \- Spanish-speaking Latino adults between 18 and 75 years of age. Design: * Participants will be screened with a brief interview. No personal samples will be needed. * Participants will complete the genetic literacy questionnaire. It will be given in Spanish. * The tool will ask about participants personal and family health history. It will also ask about their understanding of genetic terms and genetic testing. Other personal information, such as level of education, will be collected. * Participants will receive a gift card for completing the survey. * No treatment or genetic counseling will be provided as part of this study.
Key facts
- Study ID
- NCT01610583
- Run by
- National Human Genome Research Institute (NHGRI)
- People needed
- 117
- Starts
- 2012-05-24
- Expected to finish
- 2015-02-23
- Last updated by the study team
- 2019-12-17
Who can join
Age: 18 and older, up to 75. Sex: any. Healthy volunteers: not accepted.
You may not qualify if…
- Individuals over the age of 75 will be excluded because there is a possibility of confounding between literacy and cognitive decline.
- Individuals under the age of 18 will be excluded because they are likely to have different genetic literacy levels than their adult counterparts due to different levels of exposure to genetics in school curriculums.
Where it is running
- National Human Genome Research Institute (NHGRI), 9000 Rockville Pike — Bethesda, Maryland, United States
Full record on ClinicalTrials.gov
Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.