Improving Care for Children With Complex Needs

Completed · Not applicable

Conditions studied: Medically Complex Children, Care Coordination, Case Manager, Care Manager, Collaborative Care, Disease Management, Patient Care Team or Organization, Managed Care, Children With Chronic Conditions, Children With Special Health Care Needs, Shared Care Plan, Patient Care Plan, Health Care and Resource Utilization, Adherence to Care, Functional Status and Productivity, Health Related Quality of Life, Satisfaction With Care, Care Coordinator, Family Experience of Care, Quality Health Care

In brief

Seattle Children's Hospital (SCH), in collaboration with several health plans and Washington State Department of Social and Health Services developed the Comprehensive Case Management (CCM) program with the goal to reduce costs of care for medically complex children cared for at SCH as well as improve their health status and the quality of care they receive. The CCM program aims to develop and facilitate a reliable and standardized process that empowers the child's primary care provider and provides him/her with the resources s/he needs to avoid unnecessary emergency department visits and admissions. Our study will include children who had a hospitalization or emergency department visit at Seattle Children's between 2009-2012 and, at that time, had multiple active chronic medical issues but had no specialty service at Seattle Children's to help their primary care providers manage them.

Key facts

Study ID

NCT01587105

Run by

Seattle Children's Hospital

People needed

331

Starts

2010-10-01

Expected to finish

2017-09-29

Last updated by the study team

2017-11-13

Who can join

Age: 0 and older, up to 18. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• between the ages of 3 months and 18 years,
• have at least three chronic medical conditions requiring active management
• were hospitalized or had an emergency department (ED) visit at SCH within the last year
• their PCP is enrolled in the study

You may not qualify if…

• had 2+ visits to Pulmonary, Craniofacial, or Rheumatology within the last year
• had 3+ visits to Nephrology, Gastroenterology and has either Short Gut Syndrome or Crohn's Disease, Endocrinology or Neuromuscular Clinic within the last year
• has had 2+ visits to the Neurodevelopmental clinic and is followed by a NDV doctor
• cancer patient
• transplant recipient
• has cystic fibrosis, muscular dystrophy or sickle cell anemia
• has Down Syndrome and does not have any other medical issues aside from developmental delays
• renal patient on dialysis
• had a hospitalization for > 27 days

Where it is running

• Seattle Children's Hospital — Seattle, Washington, United States

Full record on ClinicalTrials.gov

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