G551D Observational Study- Expanded to Additional Genotypes and Extended for Long Therm Follow up (GOAL-e2)

Completed

Conditions studied: Cystic Fibrosis

In brief

The goal of this research study is to collect blood and urine samples from people who have either the R117H type of CF or the non-G551D gating type of CF to be kept for future research.We will also use some of the collected blood to measure the number of neutrophils.

Key facts

Study ID

NCT01521338

Run by

Steven M Rowe

People needed

120

Starts

2014-01-01

Expected to finish

2021-06-01

Last updated by the study team

2021-06-30

Who can join

Age: 6 and older. Sex: any. Healthy volunteers: not accepted.

Where it is running

• University of Alabama at Birmingham — Birmingham, Alabama, United States
• Phoenix Childrens Hospital — Phoenix, Arizona, United States
• University of Arkansas for Medical Sciences — Little Rock, Arkansas, United States
• Stanford University Medical Center — Palo Alto, California, United States
• The Children's Hospital Colarado — Aurora, Colorado, United States
• National Jewish Health — Denver, Colorado, United States
• Yale — New Haven, Connecticut, United States
• University of Chicago — Chicago, Illinois, United States
• Riley Hospital for Children Indiana University Medical Center — Indianapolis, Indiana, United States
• Indianapolis University — Indianapolis, Indiana, United States
• University of Kentucky — Lexington, Kentucky, United States
• The Johns Hopkins University — Baltimore, Maryland, United States
• Massachusetts General Hospital — Boston, Massachusetts, United States
• Children's Hospital Boston — Boston, Massachusetts, United States
• University of Michigan — Ann Arbor, Michigan, United States
• Children's Hospital of Michigan — Detroit, Michigan, United States
• Grand Rapids CF Center — Grand Rapids, Michigan, United States
• University of Minnesota — Minneapolis, Minnesota, United States
• The Children's Mercy Hospital--University of Missouri at Kansas City — Kansas City, Missouri, United States
• Dartmouth Hitchcock Clinic-Lebanon — Lebanon, New Hampshire, United States
• Women and Children's Hospital of Buffalo — Buffalo, New York, United States
• University of North Carolina at Chapel Hill — Chapel Hill, North Carolina, United States
• Cincinnati Children's Hospital Medical Center — Cincinnati, Ohio, United States
• University Hospitals Case Medical Center/Rainbow Babies and Children's Hospital — Cleveland, Ohio, United States
• Nation Wide Childrens Hospital — Columbus, Ohio, United States

Full record on ClinicalTrials.gov

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